Sunday, December 15, 2013

Sunday Update

Dr Haw came in again this morning - making it 7 consecutive days in a row that we've had the pleasure of seeing him!! (I couldn't resist asking him if he ever gets a day off!! The answer to that was something about a vacation after Christmas and that he got a day off in November!! This fixing hearts business is no joke!!)

Piper got another line out today - a large one infact from her jugular!! The picture makes it seem worse than it actually was... Our tough cookie recovered quite quickly!!



Piper feels incredibly free now... She only has 3 leads on her chest, an IV line (not in use) in her hand and a blood pressure cuff on her leg. FREEDOM!!!

The oxygen is still off and she continues to keep her numbers up all on her own. 

The feedings are going really well thanks to Elaina's help. It's amazing how little things, like position and timing, can make such a big difference. Our night nurse said she didn't take all of what they would have liked her to over night. However, her 6am, 9am, 3pm and 6pm feedings she took what she should. There was talk of putting in an NG tube (a feeding tube that goes through the nose) should she under preform. They said most cardiac kids go home with one because it's a lot of work to feed initially. We would continue to feed her as we have been, and then "tube in" the rest to get her to her goal amount. As of our departure time tonight she has met the goal amount. Praying hard she feeds for her night nurse like she did for us today!! If she takes less than 50mls at two consecutive feedings the tube goes in!! 

Leaving you now was the first smile picture I've been able to capture as she peacefully drifted off for her morning nap!!


Let the (no NG tube) prayers rise!!









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